English version of ready.registry.cz, the official website of the project REaDY (REgistry of muscular DYstrophies), was launched in March 2016.
REaDY (REgistry of muscular DYstrophies) is a clinical registry of patients suffering from Duchenne/Becker's muscular dystrophy (DMD/BMD), spinal muscular atrophy (SMA), myotonic dystrophy (DM) or facioscapulohumeral muscular dystrophy (FSHD). Starting from May 2011, the project REaDY is a follow-up to an earlier project MDB – an international DMD/BMD registry, which was established in 2004.
The aim of the registry is to record as many as possible patients suffering from the above-mentioned genetic faults and to support the development of treatment and care for those patients, based on comprehensive genetic examinations.
15. 3. 2016 IBA MU