Registry statistics

Continuously updated data on the registry statistics. Use the buttons below to show statistics for various types of muscular dystrophy that are recorded in the registry. Explanation of abbreviations:

  • DMD/BMD: Duchenne/Becker's muscular dystrophy
  • DM: myotonic dystrophy
  • FSHD: facioscapulohumeral muscular dystrophy
  • SMA: spinal muscular atrophy

Data from the SMA part of the registry has not been updated since 05/2019 due to the transfer of this part of the registry to the new system.

all diagnoses DMD/BMD DM FSHD SMA